Videos

Is there a role for nutritional guidance in the treatment of ALS? In this #experttalk, leading specialists explore how nutrition impacts ALS progression, symptom management, and patient well-being. Speakers: Dr. Terry Heiman-Patterson – Professor of Neurology at Temple University, renowned for her extensive research and clinical expertise in ALS. Dr. Ikjae Lee – Assistant Professor of Neurology at Columbia University, focusing on ALS patient care and research. Dr. Gina Tripicchio, PhD, MSEd – Associate Professor in the Department of Social and Behavioral Sciences at Temple University, specializing in public health and nutrition. About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. Stay Connected: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: / everythingals ► Facebook: / everythingals ► Subscribe for more Expert Talks: / everythingals 🔔 Subscribe to EverythingALS for expert discussions, research updates, and community support for ALS. #ALS #Nutrition #EverythingALS #ALSResearch #Neuroscience #PatientCare

Join us for an insightful discussion on CNM-Au8 Survival, Neurofilament Light Chain (NFL) Biomarker, and Phase 3 Updates with Mr. Rob Etherington, CEO of Clene Nanomedicine, and Dr. Marjan Sepassi, Clinical Development Lead. ⏱ Timestamps: 00:00 – Introduction 02:15 – Overview of CNM-Au8 and ALS Treatment 08:30 – Survival Benefit and Clinical Trial Insights 15:45 – Neurofilament Light (NFL) Biomarker Explained 22:10 – Phase 3 Update: Key Findings & Next Steps 30:00 – Q&A Session 💡 Why This Matters: CNM-Au8 is a promising investigational nanocatalytic therapy designed to enhance neuronal energy metabolism and reduce oxidative stress in neurodegenerative diseases like ALS. About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. Stay Connected: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: / everythingals ► Facebook: / everythingals ► Subscribe for more Expert Talks: / everythingals #ALSResearch #CNMAu8 #Neurofilament #ALSTreatment #EverythingALS

Join us for an insightful session with Laura P.W. Ranum, Ph.D., as she discusses how Repeat Associated Non-AUG (RAN) proteins play a role in C9orf72 ALS/FTD and their potential as therapeutic targets. This talk is part of the EverythingALS Expert Talk Series, bringing you the latest research and advancements in ALS and neurodegenerative diseases. ⏱ Timestamps: ⏱️ 00:00 – Introduction to EverythingALS & Speaker Bio ⏱️ 02:15 – Understanding C9orf72 ALS/FTD: The Basics ⏱️ 05:40 – What Are RAN Proteins? ⏱️ 12:30 – How RAN Translation Contributes to ALS/FTD ⏱️ 18:45 – Targeting RAN Proteins for ALS Therapy ⏱️ 25:10 – Research Updates & Clinical Implications ⏱️ 32:20 – Q&A with Dr. Laura P.W. Ranum 💡 Why This Matters: C9orf72 mutations are the most common genetic cause of ALS and FTD. Understanding RAN proteins could open new doors for therapeutic strategies to combat these devastating diseases. About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. Stay Connected: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: / everythingals ► Facebook: / everythingals ► Subscribe for more Expert Talks: / everythingals #EverythingALS #ALSResearch #Neurodegeneration #C9orf72 #RANProteins #LauraRanum #ALS #FTD

This #experttalk, hosted by EverythingALS, explores how cutting-edge technology, data-driven research, and community engagement are accelerating the fight against ALS. The discussion highlights the ALL ALS initiative and how individuals can contribute to groundbreaking research. ⏱ Timestamps: 00:00 - Introduction 01:15 - What is ALL ALS? 04:30 - The Power of AI & Technology in ALS Research 08:20 - Community-Driven Research & Patient Participation 12:45 - Breakthroughs & Key Findings 16:30 - How You Can Get Involved 20:00 - Q&A & Closing Thoughts About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. Stay Connected: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: / everythingals ► Facebook: / everythingals ► Subscribe for more Expert Talks: / everythingals Don’t forget to: ✅ Like this video if you found it helpful! ✅ Subscribe to our channel for more expert talks and updates: [EverythingALS YouTube Channel]. ✅ Share this video to spread awareness and support ALS research. #ALS #MolecularSubtypes #TDP43 #Neurodegeneration #EverythingALS #ExpertTalk

In this episode of the EverythingALS Expert Talk Series, Dr. Molly Gale Hammell, Associate Professor at the Institute for Systems Genetics, NYU Langone Medical Center, explores the three molecular subtypes of ALS — stress, inflammation, and TDP-43 pathology. She shares insights into how these distinct pathways contribute to ALS progression and potential avenues for targeted treatments. ⏱ Timestamps: 00:00 - Introduction 02:15 - Understanding ALS at a molecular level 05:40 - The role of cellular stress in ALS 12:20 - Inflammation and its impact on disease progression 18:45 - TDP-43 pathology: Key mechanisms and implications 25:10 - Potential therapeutic strategies 30:00 - Q&A and audience discussion About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. Stay Connected: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: https://www.linkedin.com/everythingals ► Facebook: https://www.facebook.com/EverythingALS ► Subscribe for more Expert Talks: https://www.youtube.com/c/everythingals Don’t forget to: ✅ Like this video if you found it helpful! ✅ Subscribe to our channel for more expert talks and updates: [EverythingALS YouTube Channel]. ✅ Share this video to spread awareness and support ALS research. #ALS #MolecularSubtypes #TDP43 #Neurodegeneration #EverythingALS #ExpertTalk

Welcome to another enlightening #experttalk by the EverythingALS, where we delve into cutting-edge research and innovative approaches to combating #ALS (Amyotrophic Lateral Sclerosis). This discussion dives into the science behind endogenous retroviruses (ERVs), their role in neurodegenerative diseases, and how understanding them could pave the way for innovative treatments for ALS. 🕒 Timestamps 0:00 – Introduction Meet the speakers and an overview of the session. 3:45 – Understanding Endogenous Retroviruses What are ERVs, and why are they significant in neurodegenerative diseases? 10:20 – The Role of ERVs in ALS Pathology How ERVs influence ALS development and progression. 20:15 – Innovative Therapeutic Strategies Exploring cutting-edge research and treatment possibilities targeting ERVs. 30:50 – Q&A with the Experts Addressing audience questions and discussing the future of ALS therapies. 40:25 – Closing Remarks Final insights and takeaways from the session. 👩‍🔬 About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. 📩 Stay Connected: Subscribe to our channel and turn on notifications to stay updated on the latest expert talks and research breakthroughs in ALS. 💡 Don’t forget to: ✅ Like this video if you found it helpful! ✅ Subscribe to our channel for more expert talks and updates: [EverythingALS YouTube Channel]. ✅ Share this video to spread awareness and support ALS research. 📌 For more resources and to participate in EverythingALS initiatives, visit: everythingals.org #ALS #EndogenousRetrovirus #ALSResearch #TherapeuticApproach #EverythingALS #Neurodegeneration