Videos

Welcome to another enlightening #experttalk by the EverythingALS, where we delve into cutting-edge research and innovative approaches to combating #ALS (Amyotrophic Lateral Sclerosis). This discussion dives into the science behind endogenous retroviruses (ERVs), their role in neurodegenerative diseases, and how understanding them could pave the way for innovative treatments for ALS. 🕒 Timestamps 0:00 – Introduction Meet the speakers and an overview of the session. 3:45 – Understanding Endogenous Retroviruses What are ERVs, and why are they significant in neurodegenerative diseases? 10:20 – The Role of ERVs in ALS Pathology How ERVs influence ALS development and progression. 20:15 – Innovative Therapeutic Strategies Exploring cutting-edge research and treatment possibilities targeting ERVs. 30:50 – Q&A with the Experts Addressing audience questions and discussing the future of ALS therapies. 40:25 – Closing Remarks Final insights and takeaways from the session. 👩‍🔬 About EverythingALS: EverythingALS is a patient-focused nonprofit organization dedicated to accelerating the discovery of treatments and a cure for ALS through collaboration, innovation, and empowering patients and researchers. 📩 Stay Connected: Subscribe to our channel and turn on notifications to stay updated on the latest expert talks and research breakthroughs in ALS. 💡 Don’t forget to: ✅ Like this video if you found it helpful! ✅ Subscribe to our channel for more expert talks and updates: [EverythingALS YouTube Channel]. ✅ Share this video to spread awareness and support ALS research. 📌 For more resources and to participate in EverythingALS initiatives, visit: everythingals.org #ALS #EndogenousRetrovirus #ALSResearch #TherapeuticApproach #EverythingALS #Neurodegeneration

Welcome to another compelling episode of #ExpertTalk by EverythingALS! In this session, we address one of the most critical yet often overlooked aspects of ALS care — cognitive difficulties. Our esteemed guest speaker, Dr. Cathy Hoerth, Chief of the Neuromuscular Division and Director of the ALS Center at the UCSF Weill Institute for Neurosciences, shares her expert insights and practical guidance. Dr. Hoerth sheds light on the cognitive and behavioral changes that can accompany ALS, offering evidence-based strategies to support patients, caregivers, and healthcare professionals. This discussion highlights the importance of recognizing and addressing cognitive challenges to improve the overall quality of life for individuals living with ALS. What You’ll Learn in This Episode: - Key cognitive and behavioural changes linked to ALS - Practical strategies for managing cognitive difficulties in ALS patients - Insights on caregiver support and healthcare approaches from Dr. Cathy Hoerth Don’t miss this chance to gain valuable knowledge on caring for people with ALS. Watch now and be part of the movement toward more holistic ALS care. Timestamps: ► 0:00 Introduction ► 2:00 Meet the Expert: Dr. Cathy Hoerth ► 5:15 Cognitive and Behavioral Changes in ALS ► 15:30 Practical Strategies for Caregivers ► 30:45 Resources and Support for Caregivers ► 40:00 Q&A with Viewers Follow EverythingALS: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: https://www.linkedin.com/company/everythingals ► Facebook: https://www.facebook.com/EverythingALS/ ► Subscribe for more Expert Talks: https://www.youtube.com/c/everythingals #ExpertTalk #EverythingALS #ALSResearch #CognitiveDifficulties #ALSCommunity #NeurodegenerativeDisease #ALSCare #CaregiverSupport #CognitiveHealth #UCSFWeillInstitute #DrCathyHoerth #ALSClinicalCare #ALSInsights #HealthcareInnovation #NeuromuscularDisorders If you’re interested in understanding and supporting people with ALS, hit the like button, subscribe, and turn on notifications for future updates. Share this video with others who may benefit from this essential information.

Welcome to another insightful episode of #ExpertTalk by EverythingALS! In this session, we bring you the latest updates on CNM-Au8, a groundbreaking therapeutic candidate from Clene Nanomedicine. Our expert speakers, Rob Etherington (Chief Executive Officer, Clene Nanomedicine) and Dr. Marjan Sepassi (Vice President, Medical Affairs, Clene Nanomedicine), delve into the long-term evidence supporting CNM-Au8 and the Expanded Access Program (EAP) update. Discover how Clene Nanomedicine’s innovative approach to neurodegenerative diseases is paving new pathways for ALS treatment. Rob Etherington shares strategic insights, while Dr. Marjan Sepassi provides a medical perspective on CNM-Au8’s clinical impact and the value of the EAP for patients and caregivers. What You’ll Learn in This Episode: - Key findings from long-term evidence on CNM-Au8’s efficacy - Insights on the Expanded Access Program (EAP) for ALS patients - Strategic and medical perspectives from Clene Nanomedicine’s leadership team Don’t miss this chance to stay informed about the future of ALS treatment. Watch now and be part of the conversation. Timestamps: ► 0:00 Introduction ► 2:15 Meet the Experts: Rob Etherington & Dr. Marjan Sepassi ► 5:30 What is CNM-Au8? ► 12:45 Long-term Evidence and Clinical Insights ► 25:10 Expanded Access Program (EAP) Update ► 40:00 Q&A with Viewers Follow EverythingALS: ► Website: https://www.everythingals.org ► Twitter: https://x.com/everything_als ► LinkedIn: https://www.linkedin.com/everythingals ► Facebook: https://www.facebook.com/EverythingALS ► Subscribe for more Expert Talks: https://www.youtube.com/c/everythingals #ExpertTalk #EverythingALS #ALSResearch #CleneNanomedicine #CNMAu8 #ALSUpdate #ALSCommunity #NeurodegenerativeDisease #ALSClinicalTrials #RobEtherington #MarjanSepassi #ExpandedAccessProgram #ALSBreakthroughs #MedicalResearch #HealthcareInnovation If you’re interested in the latest developments in ALS research and treatment, hit the like button, subscribe, and turn on notifications for future updates. Share this video with others who may benefit from this essential information.

*#ExpertTalk by Everything ALS* Join us for an insightful discussion on *"Shifting the Paradigm: PrimeC, an Oral Candidate for ALS"* featuring Dr. Shiran Zimri, PhD, VP of Research and Development, and Dr. Shiran Zimri, MD, Chief Medical Officer, from NeuroSense Therapeutics. Learn how PrimeC is shaping new possibilities in ALS treatment and advancing research to improve patient outcomes. Don't miss this expert-led session! #ALS #NeuroSenseTherapeutics #PrimeC #ALSResearch #EverythingALS #EndALS

#ExpertTalk with Dr. Merit Cudkowicz, MD. Dr. Merit is the Chair of Neurology Massachusetts General Hospital and the Julieanne Dorn Professor of Neurology Harvard Medical School

#ExpertTalk with Dr. Matthew Davis, MD, RPh - Chief Medical Officer, Neuvivo