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Richard Bedlack, MD, PhD
Professor of Neurology
Associate of the Duke Initiative for Science & Society
Faculty Network Member of the Duke Institute for Brain Sciences
Duke University School of Medicine
Michael Robinson, MD
Retired Pharmaceutical Executive
Person Living with ALS
Dr. Bedlack is a neurologist at Duke University and an internationally recognized expert in ALS care and research. He completed his MD, PhD, internship, neurology residency, and neuromuscular fellowship at Duke, where he also earned a Master’s in Clinical Research Science. He currently directs the Duke ALS Program and has been deeply involved in clinical trial leadership, innovative research, and patient-centered care for nearly three decades. He is also the founder of ALSUntangled, an initiative dedicated to rigorously evaluating alternative and off-label therapies for ALS. Dr. Bedlack has authored numerous publications on ALS and received awards for teaching, advocacy, and clinical excellence.
Dr. Michael J. Robinson is a psychosomatic medicine physician and former pharmaceutical executive. Trained in Canada in adult and child psychiatry, he was an associate professor at Queen’s University before holding senior leadership roles in clinical development and medical affairs at Eli Lilly and AbbVie. Diagnosed with ALS/MND in 2015, he retired in 2016 and has since been deeply involved in ALS advocacy, serving on clinical trial and research committees with a focus on improving trial design and outcome measures.
Terry Heiman-Patterson, MD
Lewis Katz School of Medicine at Temple University,
Professor of Neurology
MDA/ALS Center of Hope, Director of the Center for Neurodegenerative Diseases
Dr. Heiman-Patterson is a clinical neurologist and ALS specialist who leads the MDA/ALS Center of Hope at Temple University. With a career spanning decades, she has dedicated her work to advancing ALS clinical care, clinical trial implementation, and translational research into neuromuscular disorders. She has led numerous research studies on clinical care, genetic modifiers, biomarkers, pulmonary involvement, and brain-computer interface technologies for ALS. Dr. Heiman-Patterson has published extensively and received recognition for her contributions to ALS research and patient care.
Lyle Ostrow, MD, PhD
Associate Professor of Neurology, Lewis Katz School of Medicine Neurologist
MDA/ALS Center of Hope
Dr. Ostrow is a neurologist and ALS researcher at the MDA/ALS Center of Hope at Temple University. He holds both an MD and a PhD in Biophysics from the State University of New York, Buffalo, and completed neuromuscular fellowship training at Johns Hopkins. Dr. Ostrow directs the ALS Postmortem Core, a collaboration with the CDC National ALS Biorepository that makes autopsy tissues and data available to researchers around the world. He also serves as Chair of the Department of Defense ALS Research Program’s Programmatic Panel, influencing national research funding strategy. He is active in multidisciplinary clinical care, biomarker research, and global efforts to harmonize ALS research resources.
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