top of page

The ALS Gene Carrier Study 

Asymptomatic person with a known ALS Gene

We are looking for individuals who are Gene Carriers of ALS and Asymtomatic - not diagnosed with ALS

We are enrolling for a study motivated by the need for monitoring and  early detection of motor and speech changes using advanced computational technology. By participating in this study, you will contribute to further improve current assessment of individuals with the Asymptomatic ALS gene using physiological signals and objective measurements. This study is entirely remote, allowing you to participate from the comfort of your home at a time that suits you. 
Our goal is to sensitively detect early motor and speech changes in ALS using a multimodal monitoring approach. We will measure gait and balance, speech, and upper limb function using sensors.

This study is conducted in partnership with Massachusetts General Hospital and Harvard Medical School with a generous support from ALS Finding a Cure. 
I am interested to participate in

More Info click here

Are you enrolled in PREVENT ALS Study (DIALS) or ALS Families Study?
Do you use Assistive Devices ?
bottom of page